Version: 1.0.3 | Published: 1 Dec 2025 | Updated: 45 days ago
Compliance with National Data Opt-outs
Dataset
Summary
Reference Code:
DCB3058 Amd 91/2018
Type:
Information standards
Effective From:
18 March 2019
Applies To:
The standard applies to any health or adult social care organisation in England that handles confidential patient information.
Impacts On:
Implementation of this information standard impacts all health IT systems
suppliers providing systems to the above providers; suppliers should work with
their customers to determine necessary changes.
Conformance Date:
31 March 2020
Topics:
- Information codes of practice
- Information governance
Care Settings:
- Ambulance (Urgent and Emergency Care)
- Community health
- GP / Primary care
- Hospital
- Maternity
- Mental health
- Prison
- Social care
- Urgent and Emergency Care
Publication Date:
18 March 2019
Contact Point
Contact Point:
Documentation
Associated Media:
Description:
The national data opt-out policy was introduced on 25 May 2018, enabling patients to opt out from the use of their data for anything other than their individual care and treatment , for example research or planning purposes, in line with the recommendations of the National Data Guardian in her Review of Data Security, Consent and Opt-Outs. By March 2020 all health and adult social care organisations are required to be compliant with the national data opt-out policy, where they are using confidential patient information for purposes beyond an individual's care and treatment.
Relations:
Name:NHS Number
Explanation:ISB 0149: The NHS number is required for organisations to use the service to
check for national data opt-outs.
Name:Anonymisation Standard for Publishing Health and Social Care Data
Explanation:ISB 1523: Disclosure of information that is anonymised in line with the
Information Commissioner’s Office Code of Practice of Anonymisation is out of
scope of the national data opt-out.
Name:Data Security and Protection Toolkit
Explanation:DCB0086: Organisations are required to use the DSP toolkit to demonstrate
national data opt-out compliance
Name:GP Extraction Service - Patient Objections Management
Url:https://standards.nhs.uk/published-standards/gp-extraction-service-patient-objections-management
Explanation:SCCI2090-2144 (Retired)
Name:Patient Objections Management
Explanation:SCCI2199 (Retired)
Review & Status
Sponsor:
Dawn Monaghan, Head of Strategic Information Governance, NHS Digital
Approval Date:
04 March 2019
Business Lead:
Zerlina Heaver, Senior Project Manager, NHS Digital
Post Implementation Review Date:
31 March 2021
Scope:
Health Services, NHS Services, Adult Social Care
SRO:
Dawn Monaghan, Head of Strategic Information Governance, NHS Digital
Technical Committee:
Data Co-ordination Board (DCB)
Dataset Identifier:
1b041eff-79ac-4953-ad2c-3eb97ff4d102
Mandated:
Yes
Status:
active
Legal Authority 1
Legal Authority:
Section 250 of the Health and Social Care Act 2012
Legal Authority Description:
This information standard is published under section 250 of the Health and
Social Care Act 2012
Origin
Name:
NHSE-SD Data Catalogue